SHRINE Help Site » 1. User Guide

1.1.3 SHRINE Data Points

SHRINE currently has a complete set of data for demographics and diagnosis, and partial data sets for medications and laboratory values. The quality and completeness reflect what is available based on each institution's electronic medical record system. Queries return aggregate results only.

Note: SHRINE does not provide access to patient records. There are plans to provide access to limited deidentified data sets in a future release. There are no plans to provide access to full datasets or to patient-identified data through the SHRINE system.

Available data comprise the following:

  • Demographics – Patient demographic data available at each participating SHRINE hospital consists of:
    • Age
    • Gender – Health Level Seven International (HL7) Administrative Gender
    • Language – ISO 639-1
    • Marital status – HL7 Marital Status
    • Race and Ethnicity – Centers for Disease Control and Prevention (CDC) Race and Ethnicity Code Sets
  • Diagnoses – SHRINE contains inpatient and outpatient diagnosis information from BWH and MGH. Diagnoses are identified by National Center for Health Statistics (NCHS) ICD-9-CM standards and Clinical Classification Software (CCS) hierarchy.
  • Lab Tests – Data on lab tests are identified by Logical Observation Identifiers Names and Codes (LOINC) and Partners HealthCare System's hierarchy.
    You can constrain test terms by high/low flags, or by specific values.
  • Medications – SHRINE shows a subset of medication data for those practices that record this information. Outpatient medication information is limited to observation patients, surgical day patients, and ER patients. Medications are identified by the Unified Medical Language System (UMLS) RxNorm (Ingredient) and the Veterans Administration National Drug File Reference Terminology (NDF-RT) hierarchy.

Note the following qualifications to data availability:

  • Not all data points are available on all patients.
  • Individual patient records are not available through SHRINE.
  • Future major releases of SHRINE may include access to more detailed data, but there are currently no plans to provide full datasets.

See the data reference for a more detailed description of the data available to query by using SHRINE.